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punk2pink
  • By punk2pink · New reply yesterday at 9:08 pm
  • Journal · 3 replies
  • its crazy how fast u put weight on. u dnt even realize it until its to late. im so ashamed and disappontied in myself. i know food is my enemy but the more i hurt the more i eat. not because im hungry ...

New group in Inspire: The National Body Challenge

Brian
  • By Brian · New reply yesterday at 10:50 am
  • Journal · 12 replies
  • I am pleased to announce that today we added a new group to Inspire: The National Body Challenge. nationalbodychallenge We created this group in partnership with Discovery Health. The group focuses on ...

Looking for trial in Massachusetts

gonenatural

frustrating search

dragonfly44
  • By dragonfly44 · New reply December 31, 2008
  • Journal · 4 replies
  • NHIS dont acepted me in a trial....and in Peru if imposible to make the regulars test to determine if i have Isaacs, Stiff man. now tell me also Reynaud...tomorrow i dont.....better are make my bag to ...

Merry Christmas Everyone!!!!

Macbeth
  • By Macbeth · New reply December 7, 2008
  • Journal · 1 reply
  • I wish that all of you are healthy for the holidays. Enjoy, any day above ground is a good day. Peace and Love always!!! Lee ...

Oh Canada!!!

Macbeth
  • By Macbeth · New reply December 5, 2008
  • Discussion in Support for clinical research participants and families · 3 replies
  • Does anyone know if any trials are in Canada for rare diseases? I have fahr's disease and there's a 50% chance that my 15 son will have it later in life. Anyone with any info would be great ...

NIH news oct.30,2008

1stukie
  • By 1stukie · Posted December 5, 2008
  • Journal · 0 replies
  • title of page is Researchers Identify Mechanism and Possible Drug Treatment for Growth of Nerve Tumors in Neurofibromatosis. website is http://www.nih.gov/news/health/oct2008/n inds-30.htm . Probably ...

Patient-led drug trials defy medical establishment!

Thoreau85
  • By Thoreau85 · Posted December 1, 2008
  • Discussion in Support for clinical research participants and families · 0 replies
  • This is a recent article from the Boston Globe concerning patient-led drug trials. Please post your thoughts. http://www.boston.com/news/health/articl es/2008/11/26/patient_led_drug_trials_de fy_medical_establishment ...

MD Anderson and NF2

1stukie
  • By 1stukie · New reply November 25, 2008
  • Journal · 3 replies
  • I have e-mailed a lot of research hospitals asking about clinical trials for NF2. I received one back from Dr. Razelle Kurzock, who wrote that she is working on some drugs and putting pts on selected ...

My story - in a clinical trial

trial-participation
  • By trial-participation · New reply October 23, 2008
  • Journal · 1 reply
  • After being diagnosed with Parkinson's, I immediately set out to learn everything I could about this disease. The words "progressive" and "incurable" appeared in everything I read, but I kept telling ...

Why me?

plan4life
  • By plan4life · Posted October 23, 2008
  • Discussion in Why choose to participate? · 0 replies
  • Why not me? With fewer than 1% of people with Parkinson's disease participating in clinical trials, our hope for better treatments or the elusive cure is slowed down by lack of trial participation. I ...

Guide to Making Informed Decisions about Volunteering for a Clinical Tria

janepublic
  • By janepublic · New reply October 23, 2008
  • Discussion in What you need to know before participating · 1 reply
  • Kenneth Getz is the author of a wonderful book entitled "The Gift of Participation" which is a guide to making informed decisions about volunteering for a clinical trial. With a foreword written by Congressman ...

Medical Heroes - not guinea pigs

janepublic
  • By janepublic · New reply October 22, 2008
  • Discussion in Support for clinical research participants and families · 2 replies
  • How many times have your heard the question: Why do people choose to be guinea pigs? This question is in reference to their choice to volunteer for a clinical research study. I have met so many wonderful ...

Conference in Seattle

plan4life
  • By plan4life · Posted October 21, 2008
  • Journal · 0 replies
  • November 1st is the HOPE conference in Seattle from the Northwest Parkinson Foundation. I'm on schedule to present as part of the pdplan4life team. If you are there - I hope to meet you ...

info about clinical trials

trial-participation
  • By trial-participation · Posted October 19, 2008
  • Journal · 0 replies
  • www.clinicaltrials.gov is the website that lists all clinical trials. You can search by disease, location, drug name, etc. for Parkinson's disease: www.pdtrials.org lists most ongoing trials Fewer than ...

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The Clinical Research Volunteers Community connects patients, families, friends and caregivers for support and inspiration. The Clinical Research Volunteers Community is sponsored by the Center for Information and Study on Clinical Research Participation in partnership with Inspire.